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My Spoonie Mentor
At my firm, there is a big emphasis on mentoring relationships. We are assigned mentors, encouraged to pick our own, and look to how we can be mentors to the next generation. Our interim & annual...
View ArticleI'm Ba-ack!
I'm home!!!!!!!!!!!!!This post is coming to you live from my new computer, complete with this-decade operating system and web browser, which allows me to use Blogger!I'm overwhelmed and don't know...
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Just Another Day
Drama masks found here.As any good Sickie knows, there are times we just aren't doing well. Times when we're run down, experiencing increased symptoms, and may be having heightened disease activity....
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You Can't Finance Energy
Illustration by Tim Bower, originally published with this article in Vanity Fair.Well if that doesn't look like the way I feel on the inside most days....Tell me if this scenario sounds familiar to...
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This Monkey Needs No Uncle
This is Able, the NASA monkey who, with pal Baker, became the first mammals to be successfully launched into and returned from outer space. Photo (and related article) found here.Able is a rhesus...
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Boldly Going Where No Crayon Has Gone Before
...and that would be into my hands for an art project! (Trust me, it's a fate no art instrument deserves.)As you know, my good Blogger Buddy (and general Sjoggie-extraordinaire) Julia always has a...
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New Therapy Checklist - 10 Answers You Need
On any given day, we patients progress through a common linear set of events, such as the following:We go to the doctor with a problem - a new symptom, increased frequency or severity of an existing...
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Solar Flares and Sjogren's
In a recent post of mine, I told you I was participating in our good buddy Julia's competition to design an image that symbolized Sjogren's Syndrome (or my experience with it). Since Julia has now...
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Enervated
I learned a new word this morning: Enervated.Image found on a very cool Visual Dictionary site from Manhattan Prep GRE Blog. I relate to this hippo.I was a voracious reader as a kid. Remember those...
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You Don't Say
As some of you may know, I recently started at a new job. Yes, that's right, I've moved out of the world of the frazzled auditor and into that of the in-house accountant. My new coworkers are very...
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Weeds
Snazzy pot pic found for free, here.No, not that kind, silly! Geez, what do you take me for, really?Although, while I've never tried pot myself, as it is slowly becoming legalized in more states...
View ArticleEmpathy: The Human Connection to Patient Care
To all my activist, patient, caregiver, and professional friends, this is something worth a little more than four minutes of your time. I'll leave it to you to take from this what you will, but I can...
View ArticleSt. Mary Magdalen Church 2013 Christmas Concert
This song, "I Was Touched and I Believe", was my favorite of all the songs we performed at my church's Christmas concert this year.Yes, I have joined a choir. The last time I sang with a group was as...
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Mother, May I?
As I scan the baker's dozen posts I have in draft, spanning probably a year or more of writing attempts, I think it's time to accept that the days of my more prolific blogging (if I can put it that...
View ArticleMeat Loaf and I Lay Down the Law
I know I haven't posted in what feels like forever. I pretty much stopped posting in the spring of 2013. That's when two things happened - I switched jobs, leaving KPMG where I had been for close to...
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Embrace, Cuddle, Squeeze, Hold
Look at that face! Found here.I'm a hugger. Always have been, always will be, and the older I get the more I appreciate this about myself. I just never "got" kissing, especially in non-romantic way....
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What's It All About, Anyway
We have a lot of expectations in (and of) this life. For many of us, those expectations include having kids and building a family. Obviously, this has been a topic of great importance to me lately,...
View ArticleOur Littlest Gift
As I understand it, "grace" is a gift from God which allows us to do and experience and understand things we couldn't do, experience, or understand on our own. Our lives without grace may lack...
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2015 Sjogren's Walkabout
Team UII at the Philly SSF WalkaboutAt last it's here, it's finally SPRING!What fun and joy will this season bring?There's flowers and sunshine, and lots to do.But the most fun of all will be at the...
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Non-Traditional Mothers' Day
Happy Mother's Day, from the bottom of my heart.To my mom, to the moms in my family, to the moms I'm friends with.You know how blessed you are to have your kids, and that's one of the reasons in itself...
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There's How Many Ways to Do This?
Image of ICSI found here.Let's take a poll, shall we?Raise your hand if you know someone who has struggled with infertility.(If you actually have your hand up, good - it helps when you play...
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Let's Get Real
Warning: This post will contain a no-holds-barred description of my recent appointment at my fertility clinic. While I promise no graphic pictures, I cannot promise that descriptions of certain events...
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Get It Together
Today's the big day (well, the first of several big days) - tonight I start the stimulation drugs. These injectables will hopefully encourage many follicles on my ovaries to develop mature eggs for...
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One Little, Two Little, Three Little Follicles...
I fear I'm becoming a produce stand.That's right, I'm basically walking around with two little bunches of grapes in my pelvis.Today is Treatment Day 10, and I thought we would all enjoy a...
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Baby Bud Round Up
New post at On A Tightrope: Baby Bud Round Up!! http://tightropeact.blogspot.com/2015/09/baby-bud-round-up.htmlThis blog is set up that when I put up a post, it is automatically fed to Twitter and...
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